#IAmRETpositive: Who We Are

“There’s a lot of joy in the life you are given after a cancer diagnosis. It just may look a little different than the life you were expecting.”

RETpositive is a patient-driven nonprofit that aims to improve the quality of life and life expectancy of RET-positive cancer patients by raising awareness, providing patient + caregiver support, and funding medical research for RET-driven cancers.

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Research is Hope

RETpositive is a patient-driven 501(c)(3) nonprofit that aims to improve the quality of life and life expectancy of RET-positive cancer patients by raising awareness, providing community support and advocacy, and funding medical research for RET-driven cancer.

RET-positive cancer is caused by a mutation or abnormal re-arrangement of the RET gene. It occurs most commonly in lung cancer and several types of inherited and sporadic thyroid cancers. RET alterations also occur in an estimated 1-2% of multiple other cancers, including ovarian, pancreatic, salivary, breast, and colorectal cancers.

Join the Lung Cancer Genetics Study

RETpositive is proud to announce our collaboration with 23andMe and 20 other lung cancer advocacy groups to advance the Lung Cancer Genetics Study, the goal of which is to better understand the genetics of people with lung cancer to improve detection, risk reduction, and care.

If you live in the US, are 18 or older, and have ever been diagnosed with lung cancer we invite you to join this critical study. By sending a saliva sample + completing an online survey, you'll help drive life-saving scientific discoveries. Together, we will save lives.

Our RET Social Media Community

Find information, community, and hope in both of our private Facebook patient and caregiver support groups: RETpositive, open to patients and caregivers dealing with any RET-driven cancer, regardless of tissue of origin, and LUNGevity RET Renegades.

Connect with our RET community and stay informed of the latest RET news by following @RETpositive on Bluesky, Instagram, and TikTok. For the LUNGevity-sponsored Twitter feed with additional lung cancer-specific news, follow @RetRenegades.

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